Through a phased-approach, Congenerate Solutions is creating a flexible tailored clinical-research informatics system for congenital heart disease with the following general objectives:
- Clinical purposes: Provide an informatics solution to support work practices, improve patient flow, and monitor performance, e.g. patient follow-up, tracking, patient reports, scheduling, annual statistics.
- Research purposes: Provide a standardized information management system, particularly in the use of congenital heart disease nomenclature, to support and facilitate local projects, collaborative research, and network-based protocols.
- Patient registries: Provide an effective tool to collect patient information in a secure electronic format for state-wide/provincial, national, and/or network-based purposes.